Seven-year-old Eoin McStravick Sloan from Lucan in Co Dublin was a healthy and active little boy until he got sick last year. In October 2016 he was diagnosed with MLD (Metachromatic Leukodystrophy), a genetic, degenerative, neurometabolic disorder and since being diagnosed his condition has deteriorated rapidly.
“All his nerve endings are destroyed,” his mum Avril explains. “It attacks the nerves, and destroys them. It started with his walking and then it affected his speech, sight and swallow,” she adds. “Now he's dependent on us for everything – we feed and wash him, he can't talk. He relies on us for everything.”
On anti-spasmodic medication to control his pain, Eoin parents Avril and Gary are fundraising to make his time at home as comfortable as it can be. “There's no cure and no treatment, so it's palliative care for him,” Avril says. “We're raising money to adapt our house to make things more accessible and to make it easier for him and us. We want to be able to keep him at home for as long as possible, have him as comfortable as possible and make his life easier. That's our main priority.”
The family have recently had a wish granted by Make-A-Wish Ireland – Eoin got to go to Disneyland Paris and meet some of his heroes - “he met Darth Vader and he loved that, he had a smile on his face” - and Nissan Ireland is helping out with an accessible vehicle too. To gather the funds together to modify their home, they are raising funds via PayPal and a GoFundMe campaign. So far they have raised over €6,400 of their €10,000 target. More information can be found at their website www.oureoin.com. “People have been amazing,” Avril says, “we really appreciate it.”
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